It's hard to find the time to update the blog! Whenever we're home we want to be at the hospital, as you can imagine. I'll just give you a little update, though.
Sofia is still "being Sofia", meaning she's doing very well. She had her first feedings of milk yesterday. They have to start really slowly and she doesn't digest it very quickly, which is typical. We've been holding her quite a bit and she just loves it. A couple times she was having a hissy fit, crying, but she settled the instant she was put on my chest. Nothing can beat that feeling, wow! Dan looks pretty happy with her in that pic below, huh?
Below I had to include a pic of her lounging on her tummy, just as happy as can be. Dan and I burst out laughing when we saw her. It didn't look comfortable at all but apparently she was because her heart rate and oxygen levels were good!
Madeline is still doing pretty well. She's still on the ventilator and has a drainage tube in her chest from the surgery. We really hope this tube can come out because then she can wean off the ventilator, plus we get to start holding her. It's killing us not to be able to hold both her and James. It is harder to bond when we're unable to hold. I wish the lighting was better in the pic below. It was darker in her room and you can understand why we don't use a flash.
Josephine is doing well also. Her blood gases have been coming back great so they are thinking of changing the settings on her ventilator. We'll hear today how much less support she needs. We have been able to hold Josephine a lot as well. Another piece of good news for the three girls is that they are coming off of the bilirubin lights! The nurses will continue to check their blood for bilirubin, but as of right now they don't need the lights. Without the lights they don't need to wear the covers over their eyes. Now we can see their darling faces that much better!
James is still under those lights, but hopefully for not much longer. He is still the worst off and it breaks our hearts. The damage to his brain is quite extensive and the doctors are saying it's not something that can repair itself. He had a couple more seizures so he had to be put on a second medication. Yesterday, he was having bad blood gas levels so they switched out his breathing tube. The switch-out was successful, but we haven't heard if it helped the gas levels. We just hope he is not in any pain; we can't stand that there's nothing we personally can do except just be there. It's hard for me to even write about him, let alone talk about him. He's our precious little boy and we love him so much. We love all of our little babies!
Thanks to everyone who has been giving us well wishes, emails/messages, etc. We especially need to thank our families who truly are there for us. It really helps that we have people behind us the whole way. Thank you so much. Wow, this post ended up being longer than I thought! Have a good weekend everyone!