Sadly, Josephine did not pass her scan last night. Apparently she had a lot of de-sats and apnea... Looks like she will stay on a low flow canula and she will be re-tested tonight on it. If she does well tonight we could take her home tomorrow. It's really disappointing that she has to be on low flow. All of the nurses and docs were surprised that she did poorly on the scan, but they do think it will probably be a month or less that she will need oxygen at home. This vocal cord problem keeps haunting us!
Today, I had an education class for home oxygen, G tube pump, and administering the nebulizer. Uftda! Too much! I wasn't that impressed with the educator but I think we will get the hang of it. One of our primary nurses taught me more today about the G tube which was helpful. I wish we could bring our primaries home with us!! We got to know them so well that it'll be weird not seeing them. Anyways, I thought I'd update this blah news- tomorrow hopefully!
The Klopp Quads: Raising identical triplet girls and our new boy... remembering James every single day.
I'm sorry she isnt able to be home with you now but better her stay the extra time then to have her need the extra help once she is home. I know you have waited long enough though!
ReplyDeleteI know what you mean about the nurses. After only a 2 week NICU stay and another week readmission for RSV I feel close to the nurses we had and will miss them!
One of my trips came home on oxygen (he had low flow for 2 months) and I have two with g-tubes now (they are weaned off now and we are just waiting to remove them). Please let me know if you have ANY questions, I would be happy to help!
ReplyDeleteMegan Corcoran
mecorcoran03@yahoo.com
Martha, Your loving updates are precious. Your daughters are sooooo cute. I hope the day will come when I can meet them. Continued strength and good wishes to you, your wee girls, and Dan. ~kp
ReplyDeletePraying that Josephine passes those tests today. I know what you mean about the primaries, I sure missed ours when we left.
ReplyDeleteAlso praying for extra strength for you when you walk out with Josephine. It was really hard for me to leave the NICU, I did not expect to be so upset. But that was the only place that my little Angel had ever been, and people knew her there. So it was an unexpected reaction when I left with all 3 of my surviving quads. Prayers of strength. (and I cried for 10 minutes in the parking lot the first time I came back for a NICU follow up clinic with my 3 survivors, also unexpected, but walking back in those doors after leaving without my Maddie was really really hard for me)
Those girls are beautiful!!!
Blessings,
Mary