Thursday, January 14, 2010

What a Ride...

I just wanted to give a quick update. This week alone has been a roller coaster (not to mention the whole NICU experience so far).

Sofia is doing well still! She is back on high-flow instead of the low-flow, but she has been coasting since then. She is getting fed every 3 hours and given a larger volume. I have been enjoying our Kangaroo time together immensely, just as before. It seems like she is letting us know even more so now when her diaper needs changing or if she's upset for another reason. I see this as a good thing!

Josephine was on high flow like Sofia and was doing so well for so many days. This morning at 3 am the nurse practitioner thought it was necessary to put her back on CPAP because she was having too many spells. The spells continued through the day even with the extra help, so they put her back on the ventilator. X-rays showed "hazy" lungs, which either meant water that needs to be peed out, or pneumonia. Since her breathing was so difficult for her, they are assuming it's pneumonia. They are treating her with antibiotics that should help her, but they also did a complete culture work-up (blood, urine, spinal fluid) just in case there's another infection lurking. The good thing is that she wasn't acting sick; she was still her feisty self! I hope the antibiotics give us a quick recovery so she can get off that vent again!

Madeline is on the vent right now but she is on track to extubate within the next couple days. They have been gradually weaning her vent settings this past week and she started steroids in preparation for extubation. She has had trouble digesting her food, though. She has given large residuals in her stomach, so they switched her temporarily to a very broken down formula. I hope she starts digesting more consistently! I'm just glad that it appears the worst of her sickness is over.

We hope things improve for Josie and Madeline over the next couple days, and that Sofia continues her good streak. Wow, I can't say enough how true it is that the NICU is an up and down battle. It is starting to wear on us, but we have to stay positive! Have a great weekend, everyone!


  1. Thank you for the update. I know it must be so difficult when things get rocky. We're praying for you.

  2. You're right, it can wear on you. Stick together and take time for yourselves too! Praying for you guys constantly!

  3. Dan and Martha, You all remain in my daily prayers. I'm thankful your little sweethearts have such good care. It's easy for me to say, "Stay the course," but that's what you must do. You are good at finding the joy and blessing in each day, keep it up. Thanks for your updates.

  4. The NICU is one of the most stressful places. I have just brought a 29 week preemie home, and wish I had words of wisdom to help through this rollercoaster, but I have none other than rely on God. You have all been in my prayers. Hang in there, it will get better!

  5. the NICU is a roller coaster til the youngest brother was born at 24 wks, was in the NICU for quite sometime...the ups and down were trying on the whole family but in the end he's a healthy 14 yr old who has surpassed all the doctors expectations they had due to all the troubles he had as an infant (blood on the brain, pneumonia 3-4 times, troubles eatting...etc)

    I'm praying for your girls and for you to have the strength needed to get through all this

  6. Continuing to pray for your family! Your girls are strong little fighters!

    Carissa Chap (sister-in-law of Erin Remme's)

  7. Continuous prayers for Sofia, Josephine & Madeline.

  8. Hang in there mama! I have triplets that are 13 months old now. They were born 9 weeks premature and spent one month in the NICU. We had our share of ups and downs but all babies are home and healthy. Many prayers to you and your precious new family.

    If you ever need someone to talk to - feel free to reach out to me via Face Book. (Michell Garzon)